Supportive Care Needs: External Support for Parents of Children with Thalassemia
- DOI
- 10.2991/ahsr.k.200204.039How to use a DOI?
- Keywords
- parents, thalassemia, external support
- Abstract
Deficiencies in the social support system are most often expressed by parents who have a child with thalassemia. Parents need to be able to adapt to changes in children’s conditions. If parents do not get adequate social support there will be obstacles in the social interaction. In the end, this condition will also affect the emotional condition of parents in providing care for children with thalassemia. The purpose of the study was to obtain in-depth information about the supportive care needs of parents with young children with thalassemia. This study used a qualitative design with phenomenological studies. The characteristics of the participants were: being able to speak Indonesian, cooperatively and openly, not experiencing health problems, and being able to tell their experiences well. 5 participants in total were involved in this study through a snowball sampling method. The interview guide was used as a research guide in gathering data. Based on the results of data analysis, 5 participants obtained the theme of external support including the category of peer support among parents who had children with thalassemia, support from the environment around the home, and support from the school. These findings were expected to improve the fabric of love and communication among fellow thalassemia facilitated by the Association of Parents of with Thalassemia Children.
- Copyright
- © 2020, the Authors. Published by Atlantis Press.
- Open Access
- This is an open access article distributed under the CC BY-NC license (http://creativecommons.org/licenses/by-nc/4.0/).
Cite this article
TY - CONF AU - Roro Lintang Suryani AU - Murniati PY - 2020 DA - 2020/02/10 TI - Supportive Care Needs: External Support for Parents of Children with Thalassemia BT - Proceedings of the 1st International Conference on Community Health (ICCH 2019) PB - Atlantis Press SP - 174 EP - 177 SN - 2468-5739 UR - https://doi.org/10.2991/ahsr.k.200204.039 DO - 10.2991/ahsr.k.200204.039 ID - Suryani2020 ER -